Caregiver support for dementia in Kuala Terengganu

Write down what the person actually managed this week, not what the diagnosis predicts. Dressing alone but needing help with buttons, walking to the kitchen but not as far as the gate. Those observations set the caregiver's real task list better than any label.

Confusion at the clinical boundary is where households get hurt. State plainly which tasks are ordinary daily support and which need a nurse, therapist or doctor, and confirm who holds each clinical instruction. An enquiry can settle the first list; the second stays with the professionals named on it.

Agree what gets written down each day and what triggers a phone call, before the first shift rather than after the first scare. Appetite, sleep, alertness and steadiness are the four worth tracking daily, because they usually shift before anything dramatic shows. Anything sudden means 999 first.

For travel planning, the nearest other areas are Marang (about 18 km).

Information about the daily routine

• Changes worth reporting to a clinician early
• Night-time pattern and any help needed after bedtime
• Tasks the person can still do independently
• A description of an ordinary day, hour by hour
• Equipment, aids or home setup already in place